Case studies

Applications to access data in the DDS, are managed by the local teams under strict governance rules.

Live

Project name	Applicant	Summary	Data state	Project type
Childhood immunisations	North East London Foundation Trust	The childhood immunisations extract provides the North East London CHIS with child health immunisation data from North East London GP practices to report on, and monitor, immunisation uptake. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
Childhood immunisations - Polio	North East London Foundation Trust	The childhood immunisations extract provides the North East London CHIS with child health Polio immunisation data from North East London GP practices to report on, and monitor, immunisations against Polio due to increased Polio cases in North East London. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest). For more information see https://northeastlondon.icb.nhs.uk/news/polio-and-mmr-vaccinations-available-to-children-in-north-east-london/.	Patient identifiable	Sextant extract
Childhood immunisations - Covid19	North East London Foundation Trust	The childhood immunisations extract provides the North East London CHIS with child health Covid19 immunisation data from North East London GP practices to report on, and monitor, immunisations against Covid19 due to increased Covid19 cases in North East London. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
Diabetic retinopathy recall	Homerton University Hospital NHS Foundation Trust	This project aims to identify sight-threatening diabetic eye disease at a treatable stage, to prevent blindness in people with diabetes. (Barking & Dagenham, Havering, Redbridge, and Waltham Forest).	Patient identifiable	Sextant extract
Health checks (BHR)	London Borough Councils	The Barking and Dagenham, Havering, and Redbridge Health check project uses a Discovery Data Service query to identify all individuals who are eligible for an NHS Health Check. (Barking and Dagenham, Havering, and Redbridge).	Patient identifiable	Sextant extract
NE London Diabetes Eye Screening	Homerton University Hospital NHS Foundation Trust	To provide a monthly list of everyone with Diabetes, the information will be used for direct patient care purpose to ensure all those who need it are screened, and those who have moved away or died are not invited for screening unnecessarily. (City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
NHS 111 Discovery frailty flagging	North East London ICB	"As a London Ambulance Service (LAS) clinician who provides expertise for NHS 111 in North East London (NEL), I want to obtain access to the local NEL information within the Discovery Data Service Dataset to determine whether the caller is potentially seriously frail." The Discovery Data Service helps to identify potentially frail patients using a frailty algorithm and the results are provided via the Get flag for patient API. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Subscriber API
Remote Monitoring Flag	North West London ICB	“As a patient on a London Covid pathway, I want clinicians involved in my care to be sighted on my status so that if I do need support when my Covid service is closed, 111 provides me with appropriate access to a clinician and continuity of care in a crisis.” For those callers to 111 who are on a Covid pathway we want to identify this patient cohort as soon as possible following 'red flag' (life threatening) questions, and transfer to a clinician as a high priority (within 15 mins). This ensures the most appropriate outcome/priority (speed of response) for these patients. By having this as a flag on the patient record, we will streamline the 111 call response.	Patient identifiable	Subscriber API
Know Diabetes	NWL Health & Care Partnership	A Sextant remote database for the KnowDiabetes RDBMS with bulk diabetes related patient data from NWL GP Practices; Diabetes related data is patient identifiable for the purposes of direct care, data to be processed, not shared, on behalf for GP Data Controllers.	Patient identifiable	Sextant database
Barts Pancreas Tissue Bank (BPTB)	Barts Health NHS Trust	The Barts Pancreas Tissue Bank (BPTB) is a unique and vital resource for researchers to provide a multitude of specimen types from pancreas disease and cancer patients as well as healthy controls. The samples are mainly collected from the Royal London Hospital and curated at Barts Cancer Institute. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
East London Genes and Health (Phase 3)	North East London ICB	The Genes and Health (Phase 3) study aims build on the phase 1 study and phase 2 study to improve the health of people of Pakistani and Bangladeshi heritage by analysing the genes and health of 100,000 local people. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
Ethnicity and Language - Barts	Barts Health NHS Trust	The Ethnicity and Language extract provides patient level data from GP records where this information is not available in the Barts Health NHS Trust system for their active patients. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
Ethnicity and Language - Homerton	Homerton University Hospital NHS Foundation Trust	The Ethnicity and Language extract provides patient level data from GP records where this information is not available in the Homerton Healthcare NHS Foundation Trust system for their active patients. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
Barts Vaccine Safety	Barts Health NHS Trust	This project, using an alerting tool and algorithm, tracked the clinical events of citizens vaccinated against COVID19 who then subsequently attended any of the three emergency departments operated at Barts Health NHS Trust between 01/12/2020 and 01/06/2021. The specific focus of the data query is to investigate coagulopathies presenting via the emergency department. (North East London ICB; Tower Hamlets, Newham, Waltham Forest, City & Hackney boroughs).	Pseudonymised NHS Numbers	Subscriber API
Oxford Covid Study	Nuffield Department of Primary Care Health Sciences, Oxford University	The objectives of this project are to rapidly establish the uptake of new COVID-19 vaccinations and to evaluate the comparative safety profile of the new COVID-19 vaccines in the general population by vaccine type and within disease subgroups. A pre-defined subset of data from GP and secondary care publishers is provided to the MARS@Oxford database – Medical Analysis Research System at Oxford University.	Pseudonymised	Sextant database
North West London to OneLondon Cerner HIE (London Care Record)	North West London ICB	The OneLondon Care Record is a digital system that gives you an instant view of a person’s health and care information when you need it at the point of care. It is an up-to-date record of their information over time and across different parts of the NHS and social care in London and some neighbouring areas. A central OneLondon Health Information Exchange is connected to a series of local Health Information Exchanges (HIEs) enabling data to be shared and accessed by health and care professionals across London.	Patient identifiable	Subscriber API
Clinical Effectiveness Group (CEG) GP Compass	Queen Mary University of London North East London ICB	A locally hosted database of Discovery Data Service standardised patient data from publishing GP practices in City & Hackney, Newham, Tower Hamlets, Waltham Forest, Barking & Dagenham, Havering, and Redbridge. For more information see Current published data.	Patient identifiable	Remote subscriber database
North East London GP Compass	North East London ICB	A locally hosted database of Discovery Data Service standardised patient data from publishing GP practices in City & Hackney, Newham, Tower Hamlets, Waltham Forest, Barking & Dagenham, Havering, and Redbridge. For more information see Current published data.	Pseudonymised	Remote subscriber database
South East London GP Compass	South East London ICB	A locally hosted database of Discovery Data Service standardised patient data from publishing GP practices in Bexley, Bromley, Greenwich, Lambeth, Lewisham, and Southwark. For more information see Current published data.	Pseudonymised	Remote subscriber database
UPRN	North West London ICB North East London ICB South East London ICB	The algorithm, known as ASSIGN (AddreSS MatchInG to Unique Property Reference Numbers), allocates a Unique Property Reference Number (UPRN) to patient records. Every property in the UK already has a UPRN, which is allocated by local authorities and made nationally available by Ordnance Survey. This gives every address a standardised format that enables pseudonymised linkage to other sources of data. As addresses are typically entered into patient records as free text, ASSIGN compares addresses in the NHS record with Ordnance Survey's 'Address Base Premium' UPRN database, one element at a time, and decides whether there is a match. The algorithm, developed by Clinical Effectiveness Group (CEG) in partnership with David Stables of Endeavour Health, mirrors human pattern recognition, so it allows for certain character swaps, spelling mistakes and abbreviations. It also includes patients’ past addresses, making it possible to study changes of address across the life span.	Patient identifiable and Pseudonymised	Subscriber API
Whole Systems Integrated Care Data Warehouse (WSIC)	North West London ICB	This project provides WSIC with Discovery Data Service standardised patient data, as bulk and delta data files, for all North West London primary care GP, community care services, and secondary care services publishing data to the DDS. For more information see Current published data.	Patient identifiable	Remote subscriber database
Breast Cancer Now Tissue Bank	Barts Health NHS Trust	The Breast Cancer Now Tissue Bank (BCNTB) is the UK’s largest unique collection of high-quality breast tissue, cells, and blood samples from breast cancer patients as well as healthy controls. The samples are collected, processed, and stored by four centres led by the Barts Cancer Institute (BCI). In addition to samples and anonymised data linked to each sample, they provide researchers with open access to a wealth of data for breast cancer research through their bioinformatics portal. The extensive primary and secondary care data provided by the Discovery Data Service for North East London will help build a world-class repository of biosamples with comprehensive clinical annotations, allowing researchers to design innovative studies and gain new insights into breast cancer. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
Targeted Prostate Cancer Healthcheck	North East London Cancer Alliance	The Targeted Prostate Health Check (TPHC) project supports NHS England’s post-pandemic cancer recovery objectives and also the Long Term Plan cancer ambition to diagnose 75% of all cancers at an earlier stage, by 2028. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
BHRUT to One London Cerner HIE (London Care Record)	Barking, Havering, and Redbridge University Hospitals NHS Trust	The OneLondon Care Record is a digital system that gives you an instant view of a person’s health and care information when you need it at the point of care. It is an up-to-date record of their information over time and across different parts of the NHS and social care in London and some neighbouring areas. A central OneLondon Health Information Exchange is connected to a series of local Health Information Exchanges (HIEs) enabling data to be shared and accessed by health and care professionals across London.	Patient identifiable	Subscriber API

Development

Project name	Applicant	Summary	Data state	Project type
NEMS PDS Birth Notification and PDS Death Notification	Clinical Effectiveness Group, Queen Mary University of London	The aim of this project is to ingest PDS birth notifications and PDS death notifications from the NHS National Event Management System (NEMS) for patients registered at a GP practice under North East London ICB. This data will be key to review of clinical pathways and will help shape the health and care provided to the 2.3 million residents of the NEL ICB. This data will also be used in population health dashboards to help structure future care aimed at patients with gestational diabetes. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	NHS Spine publisher
Know Diabetes - Long Term Conditions	NWL Health & Care Partnership	This project is an extension to the Sextant remote database for the KnowDiabetes relational database management system (RDBMS) extending beyond diabetes data to provide data for various cardiovascular conditions from NWL publishing GP Practices. This data is patient identifiable for the purposes of direct care, data to be processed, not shared, on behalf of GP Data Controllers as per authorised information governance controls.	Patient identifiable	Sextant database
North East London Diabetes Eye Screening V2	Homerton University Hospital NHS Foundation Trust	To provide a monthly list of everyone with Diabetes, the information will be used for direct patient care purpose to ensure all those who need it are screened, and those who have moved away or died are not invited for screening unnecessarily. (Barking & Dagenham, Havering, Redbridge, City & Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract
Health Checks - Redbridge 13 GP practice pilot (POCT)	London Borough of Redbridge	Redbridge Health Check project uses a DDS query to identify individuals aged 18 to 39 years who have been invited for, or have undergone, an NHS Health Check as part of a new NHS pilot across 13 GP practices within six PCNs.	Patient identifiable	Sextant extract

Inactive

Project name	Applicant	Summary	Data state	Project type
Cabergoline	Barts Health NHS Trust	The aim of this project is to determine whether there is a link between cabergoline at lower ‘endocrine doses’ (typically used in the treatment of hyperprolactinaemia) and the development of fibrotic heart disease.	Patient identifiable	Sextant extract
Childhood immunisations and six week check	North East London Child Health Information Service (CHIS)	The daily extract (delta) provides an update on changes made to the defined criteria over the past 24 hours; so that the hub and GP systems are in sync.	Patient identifiable	Sextant extract
ELHCP Analytics Portal	East London Health & Care Partnership	Link with THE Discovery Data Service to combine data across the STP footprint to deliver a collaborative and fully informed approach to a holistic view of the citizen in the STP footprint, to enable predictive analytics to be more proactive in delivering healthcare and to provide a portal for informed and effective service redesign and planning.	Pseudonymised	Remote subscriber database
LBH Adult Social Care linkage	London Borough of Hackney	Linking adult social care users to primary and secondary care data.	Pseudonymised	Sextant extract
Molecular Epidemiology Approach Towards Pancreatic Cancer (PaC)	Barts Cancer Institute, Queen Mary University of London	Molecular pathological epidemiology (MPE) has contributed to the better understanding of several neoplastic diseases . By connecting putative etiological factors to specific molecular signatures across tumour phenotypes, the MPE approach can yield more accurate risk measures regarding PaC. Towards this broad goal, a case-control study will be conducted first on patients with different types of pancreas cancer and pancreatico-biliary diseases to identify associations among potential risk factors and PaC diagnosis and prognosis.	Anonymised	Sextant extract
Serious Mental Illness (SMI)	East London Foundation Trust (ELFT)	The SMI query reconciles ELFT secondary care mental health data with primary care SMI datasets.	Pseudonymised	Sextant extract
Whole Systems Data Project	Tower Hamlets CCG	The project provides an integrated health, social care and wider determinants of health dataset across Tower Hamlets that allows effective risk stratification and needs-based resource allocation for the local population based on evidence.	Patient identifiable and anonymised	Remote subscriber database
LBH Social Services Interventions	London Borough of Hackney	The aim of the project is to link primary care and secondary care data to adult social care records on an individual level to understand the prevalence of multimorbidity and healthcare usage among those people with short and long term social care packages in order to target potential interventions such as digital CBT promoted through social services.	Pseudonymised	Sextant extract
SidM Health	Coplug	Further development of SidM Health linked to ongoing work commissioned by City and Hackney with CCG. Development of SidM Health in line with project scope for  Innovate UK bid Digital health technology catalyst round 4: collaborative R&D	Pseudonymised	Sextant extract
East London Genes and Health (Phase 2)	North East London ICB	The Genes and Health (Phase 2) study aims build on the phase 1 study to improve the health of people of Pakistani and Bangladeshi heritage by analysing the genes and health of 100,000 local people. (Barking & Dagenham, Havering, Redbridge).	Patient identifiable	Sextant extract
East London Genes and Health (phase 1)	North East London ICB	The East London Genes and Health (ELG&H) study aims to improve the health of people of Pakistani and Bangladeshi heritage by analysing the genes and health of 100,000 local people. (City Hackney, Newham, Tower Hamlets, and Waltham Forest).	Patient identifiable	Sextant extract