Current published data and Welcome to the London Discovery Data Service knowledge base: Difference between pages

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This article provides the latest data publisher information by sector, geographical area, service, and system provider.


'''Total number of distinct person records in the Discovery Data Service = 14,350,816'''
__TOC__
These articles describe the Discovery Data Service; the architecture that underpins the data service, the components that make up the service, the testing and assurance processes, and the resources, open source technologies, and software that are used to host, develop, and support the service.


=== GP practices ===
=Discovery Data Service status=
Total number of distinct GP patient records = 16,865,529


* [[#NEL|North East London]] = 5,738,475
* The data service is live.
*[[#NWL|North West London]] = 6,202,961
* It currently stores and processes the data from 28 million linked organisational patient records in the UK.
* [[#SEL|South East London]] = 4,893,057
* It contains long term records on 14 million unique UK citizens who have been resident in London at some point in the last 30 years (including people who have left or died).
* Other = 31,036
* Data on individuals are held in a single common data model with data values represented by a super ontology composed of the world's leading health ontologies.
{{Note|10 years' of 'left and deads' data is included for inner North East London - City & Hackney, Newham, Tower Hamlets, and Waltham Forest.}}
* Data in Discovery is submitted by health providers who provide primary, secondary, and urgent care services to patients or clients.
* Data is kept up to date in close to real time - at worst within 24 hours; see [[Latency of extract data feeds]] for more details.


Total number of GP practices = 850
= Discovery overview =


*[[#NEL|North East London]] = 293
These articles provide background to the ideas, philosophies and approaches that have resulted in the Discovery Data Service. They cover the original objectives, the approach to collaboration and shared tenancy, and the information governance rules that underpin the way privacy and sharing are balanced.
*[[#NWL|North West London]] = 351
*[[#SEL|South East London]] = 204
* Other = 2
{{Note| This also includes closed GP practices.}}


=== Acute services ===
*[[What_is_Discovery|What is Discovery]]? - This article describes what Discovery is and how it is conceptualised at a very high level.
*[[Case studies]] - An overview of some initial projects that access and utilise data from Discovery; information includes the applicant, project summary, and the latest status (Development/Live).
*[[Latest news]] - The latest information for all Discovery Data Service releases and changes, plus known issues and updates from system suppliers and other third parties.
*[[Current_data_sets|Current data sets]] - the broad types of data received from various systems.
*[[Current published data]] - provides the latest data publisher information by sector, geographical area, service, and system provider.


* Total number of acute patient records = 4,860,994
= Information model topics =
*[[Category:Data Sets]] Total number of acute services = 4


=== Community and Mental Health services ===
These articles provide information about the services, structure, and functionality that operate using the Information Models; one of the fundamental tenets of the Discovery Data Service. This is the starting point for those interested in health data and the information derived from it, and why Discovery may be different from other approaches:


*Total number of Community and Mental Health patient records = 6,412,596
*[https://wiki.endeavourhealth.org/index.php?title=Discovery_health_information_model Health Information model] - An overview of the approach to the Discovery information model,  the purpose, and type of content.
*Total number of Community and Mental Health services = 108
*[https://wiki.endeavourhealth.org/index.php?title=Discovery_health_information_model#Information_model_language Modelling language] - The W3C standard languages used to build the various components of the information model
*[[Health_data_model_content|Basic health data set ]] - a very high level overview of the types of data mapped from data held  within the Discovery data stores.
*[[Information model reference data|Reference data -]] an overview of additional data held in the information model.
*[[Mapping and matching concepts|Mapping and matching concepts and structures]] - Introduces the approaches to matching and mapping concepts and the structural mappings in the model
*[[Information_model_service|Information model services]] - the technical services , such as APIs and apps that enable an model instance to be used or to implement an EHR based on the model or particular data model


=== Other services ===
= Publishers and subscribers =
These articles provide some brief high level information for organisations that send data to Discovery and those that use that data.


*Total number of other patient records = 3,556,666
* [[Publishers]] - includes technical interface information, FHIR mapping, system requirements, and how to make changes to publishing services.
*Total number of other services = 22
* [[Subscribers]] - includes set up, data mapping, and schema information.


===<span id="NEL"><span>North East London ===
= Services and applications =
<table class="borders">
<tr>
<th colspan="3" class="borders" style="border-bottom: solid 1px black">Primary Care GP</th>
<th colspan="2" class="borders" style="border-bottom: solid 1px black">Secondary Care</th>
<th class="borders" style="border-bottom: solid 1px black">Unscheduled Care</th>
<th colspan="2" class="borders" style="border-bottom: solid 1px black">Community &amp; Mental Health</th>
</tr>
<tr>
<td class="borders" style="background-color: #ff9800;color: #ffffff;font-weight: bold;">EMIS Web</td>
<td class="borders" style="background-color: #ff9800;color: #ffffff;font-weight: bold;">SystmOne</td>
<td class="borders" style="background-color: #ff9800;color: #ffffff;font-weight: bold;">Vision</td>
<td class="borders" style="background-color: #37474f;color: #ffffff;font-weight: bold;">Cerner Millenium</td>
<td class="borders" style="background-color: #37474f;color: #ffffff;font-weight: bold;">Medway</td>
<td class="borders" style="background-color: #ff9800;color: #ffffff;font-weight: bold;">Adastra</td>
<td class="borders" style="background-color: #37474f;color: #ffffff;font-weight: bold" ; "border-bottom: solid 1px black";>EMIS Web<br/> Community</td>
<td class="borders" style="background-color: #37474f;color: #ffffff;font-weight: bold;" "border-bottom: solid 1px black";>Rio</td>
</tr>
<tr>
<td class="borders">Barking & Dagenham<br/>32</td>
<td class="borders">Barking & Dagenham<br/>1</td>
<td class="borders">Havering<br />1</td>
<td class="borders"><ref>ADT feed only.</ref>Homerton Hospital Trust</td>
<td class="borders">BHRUT</td>
<td class="borders">CHUHSE</td>
<td class="borders">Barts Community<br /> Services
9
</td>
<td class="borders"><span style="color: #ff0000;">East London Foundation Trust*</span></td>
</tr>
<tr>
<td class="borders">City &amp; Hackney<br/>40</td>
<td class="borders" style="border-bottom: solid 1px black">Redbridge<br/>5</td>
<td class="noborders"></td>
<td class="borders"><ref>ADT feed plus daily file feed that includes CDE and CDS files.</ref>St Barts Hospital Trust</td>
<td class="noborders"></td>
<td class="borders">Hurley Group</td>
<td class="borders">City &amp; Hackney GP Confederation</td>
<td class="borders"><span style="color: #ff0000;">North East London Foundation Trust*</span></td>
</tr>
<tr>
<td class="borders">Havering<br/>39 <span style="color: #ff0000;">1*</span></td>
<td class="borders">Waltham Forest<br />5</td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="borders">London Ambulance Service</td>
<td class="borders">Patient First</td>
<td class="noborders"></td>
</tr>
<tr>
<td class="borders">Newham<br />46</td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="borders"><span style="color: #ff0000;">Newham OOH*</span></td>
<td class="noborders"></td>
<td class="noborders"></td>
</tr>
<tr>
<td class="borders">Redbridge<br />37</td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="borders">PELC</td>
<td class="noborders"></td>
<td class="noborders"></td>
</tr>
<tr>
<td class="borders">Tower Hamlets<br />32</td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
</tr>           
<tr>   
<td class="borders" style="border-bottom: solid 1px black">Waltham Forest<br />34</td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
</tr>


</table>
These articles provide information about the services and applications provided by the Discovery information services.


===<span id="NWL">North West London<span> ===
* [[Discovery Query|Sextant]] - A data set distribution service with an option to post the data directly into the recipients database.
<table class="borders">
*[[Monitoring and alerting]] - provides an overview of the monitoring and alert systems in place.
<tr>
<th colspan="2" class="borders" style="border-bottom: solid 1px black">Primary Care GP</th>
<th class="borders" style="border-bottom: solid 1px black">Secondary Care</th>
<th colspan="2" class="borders" style="border-bottom: solid 1px black">Mental Health</th>
<th colspan="3"></th>
</tr>
<tr>
<td class="borders" style="background-color: #ff9800;color: #ffffff;font-weight: bold;">EMIS Web</td>
<td class="borders" style="background-color: #ff9800;color: #ffffff;font-weight: bold;">SystmOne</td>
<td class="borders" style="background-color: #37474f;color: #ffffff;font-weight: bold;">Cerner Millenium</td>
<td class="borders" style="background-color: #37474f;color: #ffffff;font-weight: bold;">SystmOne<br /> Community</td>
<td class="borders" style="background-color: #37474f;color: #ffffff;font-weight: bold;">EMIS Web<br /> Community</td>
</tr>


<tr>
*[[Data Sharing Manager|Data Sharing manager]]- DSM provides a visual representation of data that is being shared and processed and by which organisations, regions, and/or services.
<td class="borders">Brent<br /> 51</td>
<td class="borders">Central London<br />33 <span style="color: #ff0000;">1*</span></td>
<td class="borders" style="border-bottom: solid 1px black"><ref>ADT feed only.</ref>Imperial College Healthcare NHS Trust
<td class="borders">Central London Community Healthcare
40
</td>
<td class="borders">The Confederation -
Hillingdon CIC
</td>
</tr>


<tr>
*[[UPRN address match application|ASSIGN- UPRN address matching application -]] a web based application that matches single or batches of hand entered address to authoritative addresses and assigns a unique property reference number.
<td class="borders" style="border-bottom: solid 1px black">Ealing<br />1</td>
*[[Information model manager]] - an application designed to provide a view of the common information model, and support the authoring of the content of the model.
<td class="borders">Ealing<br />73 <span style="color: #ff0000;">2*</span></td>
*[[Information_model_service|Information model services]] - the technical services that enable the common information model to be used.
<td class="noborders"></td>
*[[FHIR Get Structured Record API]] - returns a complete patient record in a structured format following GP and Care Connect standards.
<td class="borders">Central & North West London NHS Trust
*[[HL7v2 API]] - Send HL7v2 ADT and ORU (clinical events) data to Discovery.
27
*Get health record - the service that obtains a fully structured health record about a person, in real time via a standards based API.
</td>
*Record publication service - the service that publishes data from health records for specific purposes, often immediately on receipt.
<td class="borders">Harrow Covid / GP Access Hub</td>
*Data set distribution service - the service that distributes sets of data for populations of patients where the definition is complex or where the subscriber is hosting a copy of the data permanently.
</tr>
*[[NHS 111 Discovery frailty flagging]] / [[Frailty algorithm]]
*[[GitHub repositories]] - descriptions and information relating to the application source code.


<tr>
= Architectures =
<td class="borders">Harrow<br />32</td>
These articles provide information about the overall high level software architecture models providing a descriptions and visualisations of the Discovery Data Service and information service components and how they interact.
<td class="borders">Hammersmith &amp; Fulham<br />28</td>
<td class="noborders"></td>
<td class="borders">Chiswick PCN Extended Hours Hub</td>
<td class="borders">K&W Healthcare</td>
</tr>
<tr>
<td class="borders">Hillingdon<br />43 <span style="color: #ff0000;">2*</span></td>
<td class="borders">Hounslow<br />44 <span style="color: #ff0000;">1*</span></td>
<td class="noborders"></td>
<td class="borders">Ealing GP Access Centres</td>
<td class="noborders"></td>
</tr>
<tr>
<td class="borders" style="border-bottom: solid 1px black">Hounslow<br />1</td>
<td class="borders" style="border-bottom: solid 1px black">West London<br />41</td>
<td class="noborders"></td>
<td class="borders" style="border-bottom: solid 1px black">Hammersmitth & Fulham Weekend Plus</td>
<td class="noborders"></td>
</tr>
<tr>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="borders" style="border-bottom: solid 1px black">Hounslow Extended Hours<br />4</td>
<td class="noborders"></td>
</tr>


<tr>
* The [[Data Storage Architecture]] illustrates how data is stored within the service and the various implementation options available for organisations that wish to use some or parts of the services.
<td class="noborders"></td>
*[[Identity Authentication Authorisation|Identity, authentication and authorisation]] specifies the approach taken by Discovery for accessing utilities and controlling some aspects of access to application functionality and some data resources, after all of the other locks have been opened.
<td class="noborders"></td>
*[[Application zone architecture]] illustrates how the data is accessed in different places and in different ways according to different use cases
<td class="noborders"></td>
*[[Pseudonymisation]] describes how Discovery generates pseudonymised data.
<td class="borders" style="border-bottom: solid 1px black">Imperial College Healthcare NHS Trust
*[[Data linking]] describes how Discovery links several patient records into a single person/citizen record.


10
= Application help =
</td>
<td class="noborders"></td>
</tr>


<tr>
*[[Data_Sharing_Manager|Data Sharing Manager]]&nbsp;-&nbsp;Data Sharing Manager provides a visual representation of data that is being shared and processed and by which organisations, regions, and/or services.
<td class="noborders"></td>
*:You can also amend or cancel data sharing and processing agreements in real time.
<td class="noborders"></td>
*[[Record Viewer]] - Record Viewer shows a combined view of an individual's patient records, using data from different source organisations.
<td class="noborders"></td>
*[[Jira]] - Jira is an effective way to share and track information and helps to make sure that tasks and issues are completed, and signed off, by all relevant teams.
<td class="borders">West London Extended Hours</td>
<td class="noborders"></td>
</tr>


<tr>
= Wiki tips =
<td class="noborders"></td>
<td class="noborders"></td>
<td class="noborders"></td>
<td class="borders">West London NHS Trust<br />21 <span style="color: #ff0000;">5*</span></td>
<td class="noborders"></td>
</tr><tr><td></td><td></td><td></td><td></td><td></td></tr></table>


===<span id="SEL"><span>South East London ===
*[[Adding a new page to the wiki]]
 
*[[Adding tables from word documents]]
<table class="borders">
*[https://www.mediawiki.org/wiki/Help:Tables Mediawiki Help:Tables]
<tr>
*[[Creating a DDS wiki watchlist]]
<th colspan="2" class="borders" style="border-bottom: solid 1px black">Primary Care GP</th>
*[[Creating a new user]]
<th class="borders" style="border-bottom: solid 1px black">Unscheduled Care</th>
*[https://en.wikipedia.org/wiki/Help:List Wikipedia Help:Lists]
<th colspan="5"></th>
*[[Test page]]
</tr>
<tr>
<td class="borders" style="background-color: #ff9800;color: #ffffff;font-weight: bold;">EMIS Web</td>
<td class="borders" style="background-color: #ff9800;color: #ffffff;font-weight: bold;">Vision</td>
<td class="borders" style="background-color: #ff9800;color: #ffffff;font-weight: bold;">Adastra</td></tr>
<tr>
<td class="borders">Bexley<br />19</td>
 
<td class="borders">Bexley<br />2</td>
<td class="borders" style="border-bottom: solid 1px black">London Ambulance Service</td>
</tr>
<tr>
 
<td class="borders">Bromley<br /> 43
</td>
<td class="noborders"></td>
<td class="noborders"></td>
</tr>
<tr>
<td class="borders" style="border-bottom: solid 1px black">Greenwich
19 <span style="color: #ff0000;">12*</span>
</td>
<td class="noborders"></td>
<td class="noborders"></td>
</tr>
<tr>
<td class="borders" style="border-bottom: solid 1px black">Lambeth <br />40</td>
<td class="noborders"></td>
<td class="noborders"></td>
</tr>
<tr>
<td class="borders" style="border-bottom: solid 1px black">Lewisham<br /> 31</td>
<td class="noborders"></td>
<td class="noborders"></td>
</tr>
<tr>
<td class="borders" style="border-bottom: solid 1px black">Southwark<br /> 32</td>
<td class="noborders"></td>
<td class="noborders"></td>
</tr>
</table>
 
Numbers indicate the number of GP practices that are sending live data.
Numbers and text in <span style="color: #ff0000;">red <sup>*</sup></span> indicate data that is not yet live.</p>
{{Note| This does not include closed GP practices.}}
     
'''Last update:''' 13 September 2021
 
'''See also:'''
 
*[[Current data sets]]
*[[Latency of extract data feeds]]
<references />

Revision as of 18:52, 27 February 2022

These articles describe the Discovery Data Service; the architecture that underpins the data service, the components that make up the service, the testing and assurance processes, and the resources, open source technologies, and software that are used to host, develop, and support the service.

Discovery Data Service status

  • The data service is live.
  • It currently stores and processes the data from 28 million linked organisational patient records in the UK.
  • It contains long term records on 14 million unique UK citizens who have been resident in London at some point in the last 30 years (including people who have left or died).
  • Data on individuals are held in a single common data model with data values represented by a super ontology composed of the world's leading health ontologies.
  • Data in Discovery is submitted by health providers who provide primary, secondary, and urgent care services to patients or clients.
  • Data is kept up to date in close to real time - at worst within 24 hours; see Latency of extract data feeds for more details.

Discovery overview

These articles provide background to the ideas, philosophies and approaches that have resulted in the Discovery Data Service. They cover the original objectives, the approach to collaboration and shared tenancy, and the information governance rules that underpin the way privacy and sharing are balanced.

  • What is Discovery? - This article describes what Discovery is and how it is conceptualised at a very high level.
  • Case studies - An overview of some initial projects that access and utilise data from Discovery; information includes the applicant, project summary, and the latest status (Development/Live).
  • Latest news - The latest information for all Discovery Data Service releases and changes, plus known issues and updates from system suppliers and other third parties.
  • Current data sets - the broad types of data received from various systems.
  • Current published data - provides the latest data publisher information by sector, geographical area, service, and system provider.

Information model topics

These articles provide information about the services, structure, and functionality that operate using the Information Models; one of the fundamental tenets of the Discovery Data Service. This is the starting point for those interested in health data and the information derived from it, and why Discovery may be different from other approaches:

  • Health Information model - An overview of the approach to the Discovery information model, the purpose, and type of content.
  • Modelling language - The W3C standard languages used to build the various components of the information model
  • Basic health data set  - a very high level overview of the types of data mapped from data held within the Discovery data stores.
  • Reference data - an overview of additional data held in the information model.
  • Mapping and matching concepts and structures - Introduces the approaches to matching and mapping concepts and the structural mappings in the model
  • Information model services - the technical services , such as APIs and apps that enable an model instance to be used or to implement an EHR based on the model or particular data model

Publishers and subscribers

These articles provide some brief high level information for organisations that send data to Discovery and those that use that data.

  • Publishers - includes technical interface information, FHIR mapping, system requirements, and how to make changes to publishing services.
  • Subscribers - includes set up, data mapping, and schema information.

Services and applications

These articles provide information about the services and applications provided by the Discovery information services.

  • Sextant - A data set distribution service with an option to post the data directly into the recipients database.
  • Monitoring and alerting - provides an overview of the monitoring and alert systems in place.
  • Data Sharing manager- DSM provides a visual representation of data that is being shared and processed and by which organisations, regions, and/or services.
  • ASSIGN- UPRN address matching application - a web based application that matches single or batches of hand entered address to authoritative addresses and assigns a unique property reference number.
  • Information model manager - an application designed to provide a view of the common information model, and support the authoring of the content of the model.
  • Information model services - the technical services that enable the common information model to be used.
  • FHIR Get Structured Record API - returns a complete patient record in a structured format following GP and Care Connect standards.
  • HL7v2 API - Send HL7v2 ADT and ORU (clinical events) data to Discovery.
  • Get health record - the service that obtains a fully structured health record about a person, in real time via a standards based API.
  • Record publication service - the service that publishes data from health records for specific purposes, often immediately on receipt.
  • Data set distribution service - the service that distributes sets of data for populations of patients where the definition is complex or where the subscriber is hosting a copy of the data permanently.
  • NHS 111 Discovery frailty flagging / Frailty algorithm
  • GitHub repositories - descriptions and information relating to the application source code.

Architectures

These articles provide information about the overall high level software architecture models providing a descriptions and visualisations of the Discovery Data Service and information service components and how they interact.

  • The Data Storage Architecture illustrates how data is stored within the service and the various implementation options available for organisations that wish to use some or parts of the services.
  • Identity, authentication and authorisation specifies the approach taken by Discovery for accessing utilities and controlling some aspects of access to application functionality and some data resources, after all of the other locks have been opened.
  • Application zone architecture illustrates how the data is accessed in different places and in different ways according to different use cases
  • Pseudonymisation describes how Discovery generates pseudonymised data.
  • Data linking describes how Discovery links several patient records into a single person/citizen record.

Application help

  • Data Sharing Manager - Data Sharing Manager provides a visual representation of data that is being shared and processed and by which organisations, regions, and/or services.
    You can also amend or cancel data sharing and processing agreements in real time.
  • Record Viewer - Record Viewer shows a combined view of an individual's patient records, using data from different source organisations.
  • Jira - Jira is an effective way to share and track information and helps to make sure that tasks and issues are completed, and signed off, by all relevant teams.

Wiki tips